I talked to AJ yesterday. She said that Kyler has gained weight but at the last feeding he threw-up and shut down. She said he shut down most of yesterday. They share the room with other patients (they seem to have a regular turn-over and have shared the room with at least four other children). Kyler gets stressed and then goes to sleep and refuses to wake up (I must admit, I know how he feels sometimes - it is a great way to avoid stress).
They've added two more medications to his diet so now he is up to five. If last evening and this morning goes/went well, they might let AJ and R take Kyler home this weekend.
There is a family area at the facility and so AJ took a shower yesterday. However, her and R are not getting a lot of sleep. They nurses wheel in a twin bed for them to sleep on at night. During the day, all they have are two folding chairs.